Just a little tired

I’ll jump in here. Yeah, its been a bit. I spoke with one of the followers on here who said, you haven’t posted in a while. “Yeah, just been lazy”. No, I’ve actually been tired. Well, we’ve all been tired. Especially our heroine Elizabeth, who we thought would “be doing better” when she started chemo. Well, that was nonsense. There has been bad days and OK days. Mostly the nausea. The first couple of days after the chemo are fine, because they shoot her with anti-nausea meds. We actually went out to eat as a family last tuesday. I’m not sure I’ve ever been so happy to eat at The Loop but it was great. But around wednesday they wear off, and it just stinks. She went up to see her class on Friday. It was long overdue as every time she has tried we cursed it by saying “hey, she’ll be there (pick a day)”. Then Dwayne would rear his ugly head or something else would happen. But she muscled up and we headed there. I left her feeling a little queasy but a friend was picking her up and going to lunch afterwords. Well, that was short lived as immediately after she just went to her moms and was wiped out. The next two days were a wash. We sat in bed for a while saturday afternoon. Both of us, just tired. Tired of her feeling bad, tired of Dwayne, tired of just being in this situation. Just a little tired. That’s probably the reason I haven’t been on here. We hear it all the time, stay positive. I’ve written on here, think positive thoughts, ride the wave. But an old friend of mine whose mother just passed from cancer told me at the jump, you’re going to hit a lot of different feelings. I’m sure I’ll get back to nonsense on here. And I’m sorry for posting this little “woe is us”. And I’m sure everyone on here will say, don’t worry about it, you have the right to. But it sucks. And we’re tired. I called the doctors because at the beginning they said if you’re feeling bad from the chemo we can switch up the cocktails we’re giving you. I’m no doctor but I think that would be a great idea at this point. Because this doesn’t seem to work. They held off the radiation due to the fact she feels like ass. They’re waiting until she feels more healthy to withstand it. Again, I’m no doctor but it would seem if we keep down this road with the same stuff we’re going to keep feeling exactly the same. 
But, a little good news goes a long way. Ham got asked (and finally accepted) a date to the senior prom. She’s going with her oldest friend. When I say old, there’s pics of them together at maybe a year and a half old. They’ve been together in the same class through elementary and middle school and in theater in high school. She texted us the picture of his “promposal” poster he made and I wont lie, I teared up on a jobsite. Then I got home and her godfather (and one of my oldest and best friends) after hearing the story said, yeah, I’ll pick up her dress. So I teared up again but thankfully I had rum out back. Elizabeth and Ham went to pick it out today. A little good news goes a long way. 
Look guys, I’m going to cut this one short. And thanks for the bended ear. I’m going to go lay down beside my bride and take a quick nap. Then wake up and be grateful to do it again. Because like I said at the very beginning of this nonsense, it ain’t a sprint, its a marathon. Love you guys and blog at you later.
#uphillbattle

Just a little tired

I’ll jump in here. Yeah, its been a bit. I spoke with one of the followers on here who said, you haven’t posted in a while. “Yeah, just been lazy”. No, I’ve actually been tired. Well, we’ve all been tired. Especially our heroine Elizabeth, who we thought would “be doing better” when she started chemo.  Well, that was nonsense. There has been bad days and OK days. Mostly the nausea.  The first couple of days after the chemo are fine, because they shoot her with anti-nausea meds. We actually went out to eat as a family last tuesday. I’m not sure I’ve ever been so happy to eat at The Loop but it was great. But around wednesday they wear off, and it just stinks. She went up to see her class on Friday.  It was long overdue as every time she has tried we cursed it by saying “hey, she’ll be there (pick a day)”. Then Dwayne would rear his ugly head or something else would happen. But she muscled up and we headed there.  I left her feeling a little queasy but a friend was picking her up and going to lunch afterwords. Well, that was short lived as immediately after she just went to her moms and was wiped out. The next two days were a wash. We sat in bed for a while saturday afternoon. Both of us, just tired. Tired of her feeling bad, tired of Dwayne, tired of just being in this situation. Just a little tired. That’s probably the reason I haven’t been on here. We hear it all the time, stay positive. I’ve written on here, think positive thoughts, ride the wave. But an old friend of mine whose mother just passed from cancer told me at the jump, you’re going to hit a lot of different feelings. I’m sure I’ll get back to nonsense on here. And I’m sorry for posting this little “woe is us”. And I’m sure everyone on here will say, don’t worry about it, you have the right to.  But it sucks. And we’re tired. I called the doctors because at the beginning they said if you’re feeling bad from the chemo we can switch up the cocktails we’re giving you.  I’m no doctor but I think that would be a great idea at this point. Because this doesn’t seem to work. They held off the radiation due to the fact she feels like ass. They’re waiting until she feels more healthy to withstand it. Again, I’m no doctor but it would seem if we keep down this road with the same stuff we’re going to keep feeling exactly the same. 

But, a little good news goes a long way. Ham got asked (and finally accepted) a date to the senior prom. She’s going with her oldest friend. When I say old, there’s pics of them together at maybe a year and a half old. They’ve been together in the same class through elementary and middle school and in theater in high school. She texted us the picture of his “promposal” poster he made and I wont lie, I teared up on a jobsite. Then I got home and her godfather (and one of my oldest and best friends) after hearing the story said, yeah, I’ll pick up her dress. So I teared up again but thankfully I had rum out back. Elizabeth and Ham went to pick it out today. A little good news goes a long way. 

Look guys, I’m going to cut this one short. And thanks for the bended ear. I’m going to go lay down beside my bride and take a quick nap. Then wake up and be grateful to do it again. Because like I said at the very beginning of this nonsense, it ain’t a sprint, its a marathon.  Love you guys and blog at you later.

#uphillbattle

Happy Birthday, heres some new gear

Let me jump right in here.

So we (well she, but we”re a team so pardon me for the jumping on the bandwagon) had chemo on Tuesday. Things were looking up. Bilirubin was down to 1.4 (hell yeah). Her platelets were up but that’s nothing terrible. Either way, things were good.   She had chemo. Then on the way home she mentions, yeah, I got Dwayne (the drain tube for those not up to speed) stuck on my jeans and thought I pulled my innards out. Hmmmm, hindsight being 20/20, that’s probably something we should’ve said while we were there. Either way, home. She woke up the next day, went through the day, good color (not like a minion, more like, the shade of a living, breathing human being). She sounded better, walked around cleaning stuff. Then she asked me to flush old Dwayne.

That’s when we hit the vortex. You see, flushing involves screwing in a saline syringe into the drain valve and squeezing it through. Well, I squeezed, and out comes saline out of her side like a squirt gun. I’m no doctor, but I know when something isn’t right. So we called in and they would try to fit us in the next day.

Next day rolls around, they will get us in at 2pm but if she’s hurting, get her in earlier. So we left at noon. However, I guess we picked the busiest day of the year to mess with Dwayne because she was wheeled back around five. In between all this I ate some questionable sushi from the cafe (it was all they had). After wheeling her back I had heard from a little birdie there was a bar across the street at the Courtyard by Marriott. They said the drinks were a little overpriced. After 5 hours inside the temple of doom I didn’t care. I’ve never been so happy to pay $26 for two beers and a glass off wine in my entire life. It could’ve been double and honestly, I wouldn’t have batted an eye. They fixed her up and we went home. She got a new tube and fresh bags (they’re actually an improvement.  I’d say pretty cool but look, its a bag and it sucks however great they make it).  There was a doctor that came by just to say hi and see how she was doing  It’s a little disconcerting when the theme song from cheers comes on whenever you enter Mayo South 2 and the nurses scream your name like NORM!!!! when you walk into the staging area  “Nice to see you again, how have you been” isn’t something you like to hear from nurses.  Either way, we’re now hoping tomorrow (Saturday) will be what we were hoping for today with her birthday.  Relatively pain free and without Howard rearing his ugly head

Oh yeah, there’s a new character in this dastardly cast of victims.  Howard the hiccup.  Yeah, apparently chemo causes hiccups.  As you can imagine, hiccups with a drain tube sticking though your ribs isn’t real cool.  Howard and Dwayne are the dynamic duo of henchmen for Larry (the tumor in case you still need to catch up).  That and they are loud.  Like a walrus mating call.  Look I’m not complaining (ok, maybe a little) but they are insane. I could move the the couch but I really would rather lay next to her with it than be without any of it.  So I pass out.

Again, for all those that have ridden the wave and helped with the cause, thank you. I am constantly blown away by the generosity and kind thoughts.  It really puts things in a different perspective and one of these weeks when I’m not exhausted, I’ll just write about that.  This is hoping that things get truly boring to the point of, well, she went to chemo a day or two ago, she came home and ate a sandwich and took a nap.  I’m hoping I need something a little more riveting to write about than that.  Where the day to day for Elizabeth becomes mundane.  Either way, thanks for the support, keep with the positive thoughts, and have a good easter and eat a lot of Easter food.  Love you guys and blog at you later.

 

Three Grand? Seriously?

Let me jump right in. Where’s the kiddie pool?

So its been a while. First off, thanks for sticking around and waiting for a new one. We had a break from the temple of doom. Thankfully it was filled with good friends and family. Our heroines sister Judy came for the first three days of the week ((ironically, much to the chagrin of my liver) and her bff Debby came for thursday and friday.  I cant speak for her but it helped me out a ton as I was able to work and I’d like to think it lifted her spirits. We had another friend come in and clean the house the likes that even I wouldn’t/couldn’t do. Thanks Vanessa, that was great. We’re still amazed at the goodwill that comes from out of nowhere. If you’re following this, we’re blown away from the generosity and eventually hope to return the favor or at least give you a hug and a kiss. Well, from Elizabeth as me coming at you with arms outstretched is a terrifying sight. Like a black bear in Alaska wanting that cheeseburger in your hand. No damn good.

So we’ll jump ahead to today, sparing you the details of the weekend, wherein there was little sleep, a little (relatively speaking) sickness, and a terrible incident where i tried to paint princess Cheese’s room white (its what she wanted) and now have to call in a professional to finish it up because halfway through, I just had enough. Terrible lapse in judgement there

Oh yeah, today. The start of round two. Her bilirubin has dropped from 2.4 to 1.4. So a good to great sign. Dwayne the drain may be altered sooner than later which will help 1000%. We had a little help with the meds and hopefully they will take. She was a little “shaky” but think eliminating one of them could stop that nonsense. It’s a nausea one so that give me cause for concern. We (her sister being the we, I just take credit for everything here) looked up medications to help with her eating. Because, well, if I were nauseous I wouldn’t want anything north of a bagel anyway. Anytime she’s tried to go outside that, the results are what you’d expect. So we (she) found Remoral. I called the nurse honestly begging her to get her hooked up. She also mentioned Marinol which is a synthetic THC, you know, the stuff that gets you high with marijuana. OK. That could work. Munchies, I’ve only heard you get the munchies with weed (only heard, I have no actual laboratory evidence. Except that empty bag of trail mix in Amsterdam. And the two large pizzas in 1991 that wer sacrificed. But there’s no receipts, no evidence.) So I asked our nurse practitioner about it.

Well, that may not be covered under insurance. It could be $3000 per script.

$3000????!!!! Seriously? Three grand. I could get real THC that would bury everyone in the room here under a mountain of cheetos for $100. For three grand I could have a truck back up to my driveway, rent a forklift and pallet jack it into my garage, and make Cheech and Chongs “Up in Smoke” look like a cheesy after school picture with one call. This made me really thing about how big a scam the pharmaceutical industry is. Well, Ive thought it a lot (why is heroin so big? It’s cheaper than Oxys and other pills on the street) but this really brought it to light. Three Grand. Great googley moogley. So we went with the Remeron. Hope it works or I’ll be calling someone reading this. That’s right, I’m talking to you. Screaming in your ear you paranoid so and such. Boo.

So back to today, I kept her up and moving all day. The first time in god knows when she has all day. Friday is her birthday and we’ll celebrate it to the best of our ability.  So if you’re on facebook, please hit her up. If not, wish her one on here. If not that, a gift basket from Total wine is appreciated (scotch, single malt, or Rum). If you dont feel this is appropriate, a nice package from Hickory Farms with the summer sausage and smoked cheeses is always a crowd pleaser. Or just keep us in your thoughts, prayers, and whatever mojo you got. Love you guys and blog at you later.

Well, we’ll take that

Let me jump in somewhere over here.

This will be a quick one as I am watching a train wreck of an award show with a bunch of hillbillies obviously drunk in vegas. I cant miss a second because they keep saying something I’ve never seen before is about to happen so lets go…

We went to the temple of doom last Wednesday. Not sure which procedure was going to happen. Either the second drain (which from our sources was more than likely to happen) or the mapping for the radiation. Well we went in and the doctor said, no drain. The bilirubin is trending down and better not to disturb it and “fix what’s working”. We’ll take that and run. Because Elizabeth wanted no part of a second one. So they went to mapping. Should take two hours. I left at 1:30. Two hours for procedure. Then sit for two. I came back at 5:00. When I drove up I thought, huh, nobody has called me. Well walking up I get a call. They’re still mapping. Apparently it was a little more troublesome than anticipated. The chemo has already started affecting the veins and arteries they need to go through. So they need to re-evaluate. It’s nothing bad, just a different track and figure out the schedule. I’m glad we had the doctor we did because he threw a positive spin on it. Nothing bad, just figure out how to do it. I can respect this as every other job I have needs some tweaking. But for now we’re up in the air.

SO, we have visitors this weekend. Her sister Judy is here for the week and her friend Debby will be here later in the week. I will (hopefully) be able to have a good full week of work. We spoke with Elizabeth’s niece who will be taking in Ham and Cheese for a week in Washington DC. Not sure she gets what brand of nonsense is about to be thrown at her but she has our thanks. Hannah and also had a great talk with one of the heads of the theater dept at FSC who offered a lot of things to help out with college costs. She also basically threw a part in West Side Story during the summer at Haley if she wanted it and it sounds like she’ll do it. We also have a week off from the Temple of Doom so that’s a plus

There’s a lot of nausea and nonsense I’ll leave out here because honestly, I’m just exhausted. But we’re doing OK. Just keep us in your thoughts. I’ll bring a little more this time but I’m about to throw on a sleeping pill on TV (baseball) and pass out. G’night Toledo. Love you guys and blog at you later.