A Call to Arms

CANNONBALLLLLLLLLL!!!!!!!!!!

So, a quick update on our heroine. After the switch of the antibiotics everything felt better a far as the nausea. So that was a win. We went and got another dose of the chemo today and hit another one next week then are off until September with that. We have mapping on August 4th then install the radiation for the right lobe on the 29th (post vowapalozza.). The CT and MRI after a week shows that everything is holding the course. No real change, but its only been a week so we”ll wait and see. We’re going to hold off on the clinical trials for now. After talking with the nurse, we’re going with the best meds with the best history for right now. To equate it to a football game (which I tend to do) its like a team scripting its first ten offensive plays. We aren’t at the point yet where we need to start chucking bombs down the field. The nurse made sense that if these drugs/methods are working, then why introduce something that may interfere or cause side effects that you dont want. And I want to say we appreciate all the advice/posts/messages/texts/emails we get (we really, really do) but none of us are doctors, and few have any medical training, especially me. There’s a lot clinically they still could do and she says they have up their sleeve if needed. I’m still going to get with MD Anderson to see what’s out there but really, lets see how this plan works. We may start to even fiddle with the nausea medicine and see if she can get behind the wheel again. So that would be a win. But for now, everything is fine.

So I’m starting the day off and like usual its on ESPN radio.  I’m paying the usual amount that I do to it (not very much) and head to the temple of doom.  It’s the day  for their nonsense awards (the ESPY’s) but also the day they auction off stuff for the Jimmy V foundation for cancer research.  I’ll be the first to say I would’ve listened to maybe twenty minutes of this and moved on in the past.  I may have flipped it back out of habit but wouldn’t have paid much mind at all. But after February I listened. The first speech I heard was Stuart Scott’s before he passed.

“Fight like hell. And when you get too tired to fight, then lay down and rest and let somebody else fight for you…I can’t do this ‘Don’t Give Up’ thing all by myself. I got thousands of people on Twitter to encourage me.” (We got a lot on here, so thank you all)

“When you die it does not mean that you lose to cancer. You beat cancer by how you live, why you live, and in the manner in which you live.” (I can vouch for this, the kids that have had Elizabeth as a teacher will make this a better place because of her.).

I kept listening. They had stories of people who have battled/are battling cancer. Again, I was absolutely riveted. I listened to Dick Vitale, a man far past his prime screaming about why can’t we do something here, the passion in that guys voice resonated. There was one guy that (again, like I do) equated it to sports and said if we’re getting beat, lets do something else and adjust. These doctors need the funds to do this (don’t, please dont start with the big, expensive building thing here, that’s for another day). But then they played Craig Sager’s speech. I didn’t know much about him until he died. But really a cool spirit.

Whatever I might’ve imagined a terminal illness would do to my spirit, it’s summoned quite the opposite. The greatest appreciation for life itself,” he said. “So I will never give up. And I will never give in. I will continue to keep fighting, sucking the marrow out of life, as life sucks the marrow out of me. I will live my life full of love and full of fun. It’s the only way I know how.” I really thought about us and how man, we really need to start to laugh again. 

The last I heard was the now famous Jimmy Valvano speech. The one with one of my most favorite quotes in the world,

When people say to me how do you get through life or each day, it’s the same thing. To me, there are three things we all should do every day. We should do this every day of our lives. Number one is laugh. You should laugh every day. Number two is think. You should spend some time in thought. Number three is, you should have your emotions moved to tears, could be happiness or joy. But think about it. If you laugh, you think, and you cry, that’s a full day. That’s a heck of a day. You do that seven days a week, you’re going to have something special.”

I started to think, I used to see these speeches and think wow, that guy is a tough SOB.  After watching my bride, and I’m a little biased here, these guys have nothing on her. She’s going to keep going. We’re going to beat this. We just need some time.  We need to keep this train rolling. So I know, if you’re like me, you probably turned off ESPN after thirty minutes of this or you’ve donated to the American Cancer Society or one of the other great groups out there.  Look, this is a free page. I’ve never asked for anything so if you would consider this a one time subscription fee.  Most of these cancer  foundations concentrate on the sexier types of cancer.  Brain, breast, skin, whatever. There is nothing wrong with that, lot of people unfortunately have to deal with them. Few deal with the specific type our heroine is dealing with here.  In the end, what will money do, I don’t know.  But I’d hope it would bring us a little closer to figuring this out.  So if you’re going to give, please give to this. Here’s a link.

http://cholangiocarcinoma.org/get-involved/donate/

Again, I’m not asking but if you were going to give to something, this might as well be it.  So thanks and we’ll blog at you guys later.  Love to all and in closing this out, another quote from Jimmy V.  One that honestly, I had to pull over because, well…..

“I know, I gotta go, I gotta go, and I got one last thing and I said it before, and I want to say it again. Cancer can take away all my physical abilities. It cannot touch my mind, it cannot touch my heart and it cannot touch my soul. And those three things are going to carry on forever.

I thank you and God bless you all.”

 

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5 thoughts on “A Call to Arms

  1. I love you sweetie! You are my Knight in flower swim trunks and a tye-dye old t- shirt. I don’t know where I would be without you😘💚 I love you more 💗

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  2. Bob, you hit this one on the head! It is a fight for Elizabeth’s life, but she has all those things that they spoke of. When I worked with her at Pine Forest, she smiled and laughed every day that I was there. She also is by nature a thoughtful person. I would frequently seeing her sitting in the office quietly, looking in deep thought, until someone would come along & pull her into a conversation. Now, I’ve never seen her brought to tears, but she brought many children to the nurses office, or asked me to check in on them. It was always with deep concern and caring for these children. And of course the way she ADORES her two daughters, who she is so proud of, rightfully so! I think that Elizabeth is not letting cancer take the things that she cherishes most. And that includes you, Bob, especially after reading her note back to you on this post. Well said for a sport analogy!! 💚💚💚💚

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  3. You all are on my mind all of the time and always in my prayers. I truly wish there was more I could do, but I am in your corner, rooting for the big win here. Keep the faith, keep the fight, and when you need to rest, if we can, let your friends fight for you!

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  4. Blessings Bob for sharing this special blog today! You are an answer to many prayers today 💚💚💚 love you much. Your mother in law💕

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