Let me jump right in here.
So we (well she, but we”re a team so pardon me for the jumping on the bandwagon) had chemo on Tuesday. Things were looking up. Bilirubin was down to 1.4 (hell yeah). Her platelets were up but that’s nothing terrible. Either way, things were good. She had chemo. Then on the way home she mentions, yeah, I got Dwayne (the drain tube for those not up to speed) stuck on my jeans and thought I pulled my innards out. Hmmmm, hindsight being 20/20, that’s probably something we should’ve said while we were there. Either way, home. She woke up the next day, went through the day, good color (not like a minion, more like, the shade of a living, breathing human being). She sounded better, walked around cleaning stuff. Then she asked me to flush old Dwayne.
That’s when we hit the vortex. You see, flushing involves screwing in a saline syringe into the drain valve and squeezing it through. Well, I squeezed, and out comes saline out of her side like a squirt gun. I’m no doctor, but I know when something isn’t right. So we called in and they would try to fit us in the next day.
Next day rolls around, they will get us in at 2pm but if she’s hurting, get her in earlier. So we left at noon. However, I guess we picked the busiest day of the year to mess with Dwayne because she was wheeled back around five. In between all this I ate some questionable sushi from the cafe (it was all they had). After wheeling her back I had heard from a little birdie there was a bar across the street at the Courtyard by Marriott. They said the drinks were a little overpriced. After 5 hours inside the temple of doom I didn’t care. I’ve never been so happy to pay $26 for two beers and a glass off wine in my entire life. It could’ve been double and honestly, I wouldn’t have batted an eye. They fixed her up and we went home. She got a new tube and fresh bags (they’re actually an improvement. I’d say pretty cool but look, its a bag and it sucks however great they make it). There was a doctor that came by just to say hi and see how she was doing It’s a little disconcerting when the theme song from cheers comes on whenever you enter Mayo South 2 and the nurses scream your name like NORM!!!! when you walk into the staging area “Nice to see you again, how have you been” isn’t something you like to hear from nurses. Either way, we’re now hoping tomorrow (Saturday) will be what we were hoping for today with her birthday. Relatively pain free and without Howard rearing his ugly head
Oh yeah, there’s a new character in this dastardly cast of victims. Howard the hiccup. Yeah, apparently chemo causes hiccups. As you can imagine, hiccups with a drain tube sticking though your ribs isn’t real cool. Howard and Dwayne are the dynamic duo of henchmen for Larry (the tumor in case you still need to catch up). That and they are loud. Like a walrus mating call. Look I’m not complaining (ok, maybe a little) but they are insane. I could move the the couch but I really would rather lay next to her with it than be without any of it. So I pass out.
Again, for all those that have ridden the wave and helped with the cause, thank you. I am constantly blown away by the generosity and kind thoughts. It really puts things in a different perspective and one of these weeks when I’m not exhausted, I’ll just write about that. This is hoping that things get truly boring to the point of, well, she went to chemo a day or two ago, she came home and ate a sandwich and took a nap. I’m hoping I need something a little more riveting to write about than that. Where the day to day for Elizabeth becomes mundane. Either way, thanks for the support, keep with the positive thoughts, and have a good easter and eat a lot of Easter food. Love you guys and blog at you later.